LAHAINA - A fundraiser for a former Maui baby diagnosed with a terminal disease will be held May 12 at the Hard Rock Cafe Maui in Lahaina.
One-year-old Trek Atlas Ingram was diagnosed in January with Niemann-Pick Type A disease, which is a rare genetic disorder with no cure or treatment.
He will not live past 3 years old, according to a release from his family.
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Trek Atlas Ingram,1, was diagnosed in January with Niemann-Pick Type A disease, which is a rare and incurable genetic disorder. A benefit for the family to help pay for expenses is being held at Hard Rock Cafe Maui on May 12.
After finding out that there was nothing they could do medically for Trek, his family decided to "just embrace life and travel," said the event organizer and aunt Amanda Sommerville.
The event at the Hard Rock from 11 a.m. to 4 p.m. will raise money for medical and living expenses.
It will include a performance by singer-songwriter Chad Van Herk. There will also be a silent auction.
For more information on the event, visit hardrock.com/maui.
Trek's family, including two older brothers, Peyton, 6, and Conner, 5, have traveled to Central America and are currently making their way to Southeast Asia, gathering stamps on Trek's passport along the way, the release said.
Trek's father, Jarrett, was a general manager of Bubba Gump Shrimp Co. in Lahaina.
For more information on the family, visit babytrekatlas. com, oursonnylife.com and jarrettingram.com.
